Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-ME), Work Productivity and Activity Impairment-Specific Health Problem (WPAI-SHP)
303
101 patients reported that “difficulty trusting healthcare providers” and 120 patients reported that “discrimination or stigmatization by healthcare professionals” were barriers to receiving healthcare.
Poor provider communication behaviors of not listening to patients, not spending enough time with patients, and not treating them with respect (60% of participants).Emergency department (ED) nurses and doctors did not believe their pain scores.Experiences of being treated badly in the ED by healthcare staff contributed to current decisions to delay seeking care during acute vaso-occlusive pain crises (83% of participants).
Discrimination subscale of interpersonal processes of care (IPC) survey
71
38% (n = 27) reported some experience with discrimination in health settings; of these 27 individuals, 21 reported doctors paid less attention to them due to race; 22 reported they felt discriminated against by doctors because of race or ethnicity.
Discrimination subscale of IPC survey2-item subscale:“How often did doctors pay less attention to you because of your race or ethnicity?”“How often did you feel discriminated against by doctors because of your race or ethnicity?”
68
Racism-based discrimination negatively impacted pain scores (average daily pain score, baseline pain score) with statistical significance.Racism-based discrimination also significantly negatively impacted depression and severity of insomnia in patients.
The authors declare no conflicts of interest in the design, collection/analyses/interpretation of data, in the writing of the manuscript, or in the decision to publish the results.
Ethical approval
Not applicable.
Consent to participate
Not applicable.
Consent to publication
Not applicable.
Availability of data and materials
The available data is included in Table S1. Other data used in this study are available upon request from the corresponding author.
Funding
No funding was utilized in the development of this manuscript.
Open Exploration maintains a neutral stance on jurisdictional claims in published institutional affiliations and maps. All opinions expressed in this article are the personal views of the author(s) and do not represent the stance of the editorial team or the publisher.
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